Hypersomnolence Australia

WHAT IS IDIOPATHIC HYPERSOMNIA?

Finding it difficult to understand Idiopathic Hypersomnia? Having trouble explaining it to others? Our fact sheet is a brief overview of what IH is, what the typical symptoms are and where you can go for help and further information.

 click on the link: 

  Fact Sheet 


 

"It's the everyday reality that I just feel I'm not getting as much out of life as I could be..."

In this video UK Dr Anu Bhatia is spot on with the 3 main symptoms of Idiopathic Hypersomnia with long sleep. Prolonged nighttime sleep (typically 12-14hrs), difficultly waking up and feeling unrefreshed and disorientated (sleep drunkenness) and excessive daytime *sleeping* - actually sleeping during the day not just tired or sleepy. Anna the young women in the video who is diagnosed with Idiopathic Hypersomnia says something I'm sure everyone with Idioapthic Hypersomnia can relate to:

"It's the everyday reality that I just feel I'm not getting as much out of life as I could be, because I'm tired or because I'm sleeping for half the day where I would rather be doing something else." - Anne 

https://www.youtube.com/watch?v=YalPNKoCIuI




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Is Idiopathic Hypersomnia a Rare Disease?

Many people ask, is Idiopathic Hypersomnia (also referred to as idiopathic hypersomnolence) a rare disease? YES IT IS! If you have trouble getting people to accept IH is not only real but that it is actually a recognised RARE DISEASE share this link from the Genetic and Rare Diseases Information Center (GARD)

http://rarediseases.info.nih.gov/gard/8737/idiopathic-hypersomnolence/resources/1


 


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www.facebook.com/hypersomnolenceaustralia


 

We have a closed Facebook Support Group open to people in Australia & NZ diagnosed with IH
Hypersomnolence Australia is a registered Not For Profit Charity - All donations are fully tax deductible
you can remain anonymous if you wish...
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Hypersomnolence Australia is a registered Not For Profit Health Promotion Charity

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Mel | Reply 13.06.2014 13.26

Congratulations on one year of Hypersomnolence Australia. To the team that have pulled this together - you are amazing. Michelle you truly are inspirational.

catriona wallwork | Reply 27.05.2014 21.32

hi my name is catriona from england i am currently going through the tests for a sleep disorder i can fall asleep in 30secs or less.

Jacqui | Reply 21.05.2014 20.13

I am so happy that I found your site just when I was about to give up hope of getting a diagnosis. Michelle, you are so supportive.

Kasha | Reply 18.05.2014 04.42

Congrats on your one year anniversary, Michelle & everyone else at Hypersomnolence Au! (I'm probably really belated lol sorry) This site is spectacular!

Emma | Reply 19.03.2014 12.49

WOW! Im not alone! I was diagnosed a few years ago and never thought there would ever be an organisation that represented meeee! Thank u, it means sooo much!

Jenni | Reply 10.02.2014 19.50

I tried modafinil, side effects were terrible. I hope you have better luck with it.

Jac | Reply 23.01.2014 07.00

Now I have a confirmed diagnosis of IH! My sleep phys has started me on modafinil. Here's hoping it helps!! Thanks for this website - good info!

Michelle 30.01.2014 14.40

Thank u! Good luck with Modafinil

Journeying John | Reply 10.10.2013 13.49

Sounds horribly familiar! I would like to find out more.

Michelle 29.10.2013 22.14

Im sorry for the slow reply I somehow didnt notice your message. If u would like to find out more u are welcome to email me or contact us thru our facebook pg

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Latest comments

13.06 | 13:26

Congratulations on one year of Hypersomnolence Australia. To the team that have pulled this together - you are amazing. Michelle you truly are inspirational.

...
06.06 | 13:35

Was diagnosed about ten years ago. I'm a 52 female. IH definitely makes living a normal life impossible.

...
27.05 | 21:32

hi my name is catriona from england i am currently going through the tests for a sleep disorder i can fall asleep in 30secs or less.

...
21.05 | 20:13

I am so happy that I found your site just when I was about to give up hope of getting a diagnosis. Michelle, you are so supportive.

...
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