WHAT IS IDIOPATHIC HYPERSOMNIA?

Finding it difficult to understand Idiopathic Hypersomnia? Having trouble explaining it to others? Our fact sheet is a brief overview of what IH is, what the typical symptoms are and where you can go for help and further information.

IDIOPATHIC HYPERSOMNIA FACT SHEET

 

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"It's the everyday reality that I just feel I'm not getting as much out of life as I could be..."

In this video UK Dr Anu Bhatia is spot on with the 3 main symptoms of Idiopathic Hypersomnia with long sleep. Prolonged nighttime sleep (typically 12-14hrs), difficultly waking up and feeling unrefreshed and disorientated (sleep drunkenness) and excessive daytime *sleeping* - actually sleeping during the day not just tired or sleepy. Anne the young women in the video who is diagnosed with Idiopathic Hypersomnia says something I'm sure everyone with Idiopathic Hypersomnia can relate to:

"It's the everyday reality that I just feel I'm not getting as much out of life as I could be, because I'm tired or because I'm sleeping for half the day where I would rather be doing something else." - Anne

Is Idiopathic Hypersomnia/Hypersomnolence a Rare Disease?

We are often asked is Hypersomnia/Hypersomnolence a Rare Disease? and the answer is YES IT IS! Check out the Idiopathic Hypersomnolence page on Genetic and Rare Diseases Information Center (GARD).

Hypersomnolence Australia is a registered Not For Profit Health Promotion Charity