Rare Disease Day

Rare Disease Day  is held on the last day of February every year to raise awareness of rare diseases.

Check out our Rare Disease Day page for images you can use and share on your social media

Support us for your chance to WIN!

CLICK HERE TO PURCHASE YOUR TICKETS

All money raised by tickets purchased via this link go directly to Hypersomnolence Australia's Help Us Change The Prognosis campaign.

There are loads of prizes to be won including 3 cars, shopping sprees, landscape package valued at $20,000, home theatre system, a $20,000 international travel voucher and much more!
Click here to check out the full prize list.

ARE YOU A GRAPHIC DESIGNER LOOKING FOR A GREAT OPPORTUNITY?

Are you interested in giving back to the community?

We are looking for someone to design the graphic artwork for the 2017 Idiopathic Hypersomnia Awareness Week.

In return for your professional graphic design you will not only be giving back to the community you will have the opportunity to add something awesome to your portfolio that will be the centrepiece for our international event reaching thousands of people from all areas of the community, all over the world! 

You will naturally be fully credited with your name and details (website etc if you have one) added to our website and social media. We will also make special social media posts dedicated entirely to you, your work and your generous contribution!

The colours and design is totally up to you, but keep in mind the event is 
“Idiopathic Hypersomnia Awareness Week 2017”, the date is 
“4-10 September 2017” and the theme is RESEARCH.

If you have more than one idea please send them all in. We will be putting all ofthe designs we receive before a panel and the one with the most votes win.

Send your design ideas to ihaweek@gmail.com  by APRIL 30TH 2017

For more information about the Awareness Week click here and check out the Idiopathic Hypersomnia Awareness Week Facebook Page 

SLEEP HEALTH IN PATIENTS WITH SLEEP DISORDERS SURVEY

Numerous studies have found that consistently sleeping for more than nine hours or fewer than eight hours a day has a negative impact on physiological, psychological and cognitive functions. Studies have also found that long periods of bed rest also have detrimental effects on the body. We know that the treatment options available for sleep disorders are in some cases limited and in other cases not suitable or not overly effective. This results in patients struggling to manage their symptoms which in turn comprise their overall health and wellbeing. However many factors besides the possible ineffectiveness or suitability of sleep medications play a role in overall health and wellbeing. Good sleep hygiene, being physically active, a balanced diet and a lifestyle conducive to a patient’s condition are all equally important.

Our survey aims to get a snapshot of the sleep health of people diagnosed with sleep disorders. What do people with sleep disorders know about sleep health? What have they been advised by their health care professionals and also what do they think they should have been told?

The survey is brief. There are only 23 multiple choice questions and it should take no more than 10 minutes to do. It is open to anyone diagnosed with a sleep disorder and is also completely anonymous. Please share this survey within your sleep disorder communities.  

Click here to be taken to the survey 

2016 Year in Review Newsletter

We keep all our social media and website up to date but for those of you that may miss our posts we have put together a "Year in Review" newsletter. It is a snapshot of some of the things we have been up to during the year. Click here to view our latest newsletter.

If you would like to subscribe for our future newsletters click on this link.

Our New Website Project - Help Us Change The Prognosis

Our current website was built by ourselves from a simple do it yourself blog template and we have desperately outgrown its capabilities. Our goal is to develop a website that provides much needed advice and information based on the concerns that patients have raised with us directly and via our patient survey. We also plan on working with professionals to put together an information brochure with the aim to distribute them to relevant doctors and health care professionals and patients. 

 

Click here for more information on how we are progressing with our new website and how you can get involved.



WHAT IS IDIOPATHIC HYPERSOMNIA?

Finding it difficult to understand Idiopathic Hypersomnia? Having trouble explaining it to others? Our fact sheet is a brief overview of what IH is, what the typical symptoms are and where you can go for help and further information.
Click here for our FACT SHEET

Daytime Sleepiness - Finding the Cause

Hypersomnolence Australia is often asked questions like “what tests should I ask my doctor for?” and “what else should my doctor consider could be the cause of my sleepiness?” So we decided who better to ask than a doctor! From that discussion we complied a list of the most common causes of daytime sleepiness to help patients and doctors find the cause. 

Have you had these possible causes of daytime sleepiness ruled out?

Check the list out here or

Click on the link for your copy of "Daytime Sleepiness - Finding the Cause" that you can print out and share it with your doctor. 

You may be wondering how our new logo relates to Hypersomnolence Australia or indeed Idiopathic Hypersomnia.


Check out the story behind 

Hypersomnolence Australia's logo design


Did You Find the Information On Our Website Helpful?

If you found the information on this website useful, then please consider making a donation. Hypersomnolence Australia receives no funding and currently charges no membership as a result we are totally reliant on donations to help fund our ongoing work of raising awareness and providing education, information and resources. 

OFFICIAL SPONSOR

www.head2toe.com.au

Head2Toe-Physiotherapy & Podiatry 
14 Pascoe Vale Rd
Moonee Ponds VIC 

For an appointment call 03 9326-0168

Hypersomnolence Australia is a registered Not For Profit Health Promotion Charity 

 Deductible gift recipient 
The Trustee for Hypersomnolence Australia is endorsed as a Deductible Gift Recipient (DGR)
from 01 Jul 2013. It is covered by Item 1 of the table in section 30-15 of the Income Tax Assessment 
Act 1997