2016 Year in Review Newsletter

We keep all our social media and website up to date but for those of you that may miss our posts we have put together a "Year in Review" newsletter. It is a snapshot of some of the things we have been up to during the year. Click here to view our latest newsletter.

If you would like to subscribe for our future newsletters click on this link.


Numerous studies have found that consistently sleeping for more than nine hours or fewer than eight hours a day has a negative impact on physiological, psychological and cognitive functions. Studies have also found that long periods of bed rest also have detrimental effects on the body. We know that the treatment options available for sleep disorders are in some cases limited and in other cases not suitable or not overly effective. This results in patients struggling to manage their symptoms which in turn comprise their overall health and wellbeing. However many factors besides the possible ineffectiveness or suitability of sleep medications play a role in overall health and wellbeing. Good sleep hygiene, being physically active, a balanced diet and a lifestyle conducive to a patient’s condition are all equally important.

Our survey aims to get a snapshot of the sleep health of people diagnosed with sleep disorders. What do people with sleep disorders know about sleep health? What have they been advised by their health care professionals and also what do they think they should have been told?

The survey is brief. There are only 23 multiple choice questions and it should take no more than 5 minutes to do. It is open to anyone diagnosed with a sleep disorder and is also completely anonymous. Please share this survey within your sleep disorder communities.  Click here to be taken to the survey 

The Idiopathic Hypersomnia Awareness Week was a huge success!

The 2016 Idiopathic Hypersomnia Awareness Week is now over but what a wonderfully successful Awareness Week we have had! Read about it here

Our New Website Project - Help Us Change The Prognosis

Our current website was built by ourselves from a simple do it yourself blog template and we have desperately outgrown its capabilities. Our goal is to develop a website that provides much needed advice and information based on the concerns that patients have raised with us directly and via our patient survey. We also plan on working with professionals to put together an information brochure with the aim to distribute them to relevant doctors and health care professionals and patients. 


Click here for more information on how we are progressing with our new website and how you can get involved.


Finding it difficult to understand Idiopathic Hypersomnia? Having trouble explaining it to others? Our fact sheet is a brief overview of what IH is, what the typical symptoms are and where you can go for help and further information.
Click here for our FACT SHEET

Daytime Sleepiness - Finding the Cause

Hypersomnolence Australia is often asked questions like “what tests should I ask my doctor for?” and “what else should my doctor consider could be the cause of my sleepiness?” So we decided who better to ask than a doctor! From that discussion we complied a list of the most common causes of daytime sleepiness to help patients and doctors find the cause. 

Have you had these possible causes of daytime sleepiness ruled out?

Check the list out here or

Click on the link for your copy of "Daytime Sleepiness - Finding the Cause" that you can print out and share it with your doctor. 

You may be wondering how our new logo relates to Hypersomnolence Australia or indeed Idiopathic Hypersomnia.

Check out the story behind 

Hypersomnolence Australia's logo design

Did You Find the Information On Our Website Helpful?

If you found the information on this website useful, then please consider making a donation. Hypersomnolence Australia receives no funding and currently charges no membership as a result we are totally reliant on donations to help fund our ongoing work of raising awareness and providing education, information and resources. 

"It's the everyday reality that I just feel I'm not getting as much out of life as I could be..."

In this video UK Dr Anu Bhatia is spot on with the 3 main symptoms of Idiopathic Hypersomnia with long sleep. Prolonged nighttime sleep (typically 12-14hrs), difficultly waking up and feeling unrefreshed and disorientated (sleep drunkenness) and excessive daytime *sleeping* - actually sleeping during the day not just tired or sleepy. Anne the young women in the video who is diagnosed with Idiopathic Hypersomnia says something I'm sure everyone with Idiopathic Hypersomnia can relate to:

"It's the everyday reality that I just feel I'm not getting as much out of life as I could be, because I'm tired or because I'm sleeping for half the day where I would rather be doing something else." - Anne



Head2Toe-Physiotherapy & Podiatry 
14 Pascoe Vale Rd
Moonee Ponds VIC 

For an appointment call 03 9326-0168

Hypersomnolence Australia is a registered Not For Profit Health Promotion Charity 

 Deductible gift recipient 
The Trustee for Hypersomnolence Australia is endorsed as a Deductible Gift Recipient (DGR)
from 01 Jul 2013. It is covered by Item 1 of the table in section 30-15 of the Income Tax Assessment 
Act 1997