HELP US CHANGE THE PROGNOSIS!

We have desperately outgrown the capabilities of this website. To be able to continue with the work we do we need your help! We have launched a crowd funding campaign on chuffed.org to help us raise the money needed to work with website developers to create a NEW purpose built website. Our goal is to develop a website that provides much needed advice and information based on the concerns that patients have raised with us directly and via our patient survey. We also plan on working with professionals to put together an information brochure with the aim to distribute them to relevant doctors and health care professionals and patients. 

For more information about how you can help us to continue to do the work required to assist people with Idiopathic Hypersomnia live the best life possible check out our campaign

Please share our poster with a link to the campaign with your family, friends and contacts.
https://www.chuffed.org/project/help-us-change-the-prognosis

CAMPAIGN UPDATE

We had a great day with our Melbourne Street Appeal. Thank you to all of the wonderful people that donated and showed interest in our campaign. We handed out over 100 flyers with information about Idiopathic Hypersomnia and Hypersomnolence Australia's campaign so it was a great opportunity to raise awareness as well as much needed funds. We raised $150.00! We are very please to say that this brings our campaign total to $1075.00! We still have a fair way to go so watch this space for more information on fundraising events and campaign updates.

*Please help by sharing our campaign with your contacts* 

Thank you to all our supporters. We appreciate every donation, big and small as it all helps to get us closer to reaching our goals.

If you are a business or know of one that may be interested in becoming an official sponsor we have a great opportunity. Our current website has had over 172000 visits since it was officially launched in June 2013, that's approx 200 visits a day. For the opportunity to reach thousands of people via our website we are offering official sponsorship at just $250 annually.

As an official sponsor you will have a colour image of your logo with a link to your website included on the front page of our website for 12 months. We will also give you regular shout outs on our social media. The 12 months will officially start from the time our new website is up and running however we will add you logo to our current website and start shout outs on our social media immediately. This will mean that we will proudly promote your business for at least 15 months. 

For more details or to become official sponsor email us at admin@hypersomnolenceaustralia.com

Hypersomnolence Australia is a registered Not for Profit Health Promotion Charity with full DGR Item 1 status. All donations are tax deductible.

 

Please share our poster and campaign link with your family, friends and contacts https://www.chuffed.org/project/help-us-change-the-prognosis

WHAT IS IDIOPATHIC HYPERSOMNIA?

Finding it difficult to understand Idiopathic Hypersomnia? Having trouble explaining it to others? Our fact sheet is a brief overview of what IH is, what the typical symptoms are and where you can go for help and further information.
Click on the link to download a printable copy

IDIOPATHIC HYPERSOMNIA FACT SHEET

or check the FACT SHEET out here 

Daytime Sleepiness - Finding the Cause

Hypersomnolence Australia is often asked questions like “what tests should I ask my doctor for?” and “what else should my doctor consider could be the cause of my sleepiness?” So we decided who better to ask than a doctor! From that discussion we complied a list of the most common causes of daytime sleepiness to help patients and doctors find the cause. 

Have you had these possible causes of daytime sleepiness ruled out?

Check the list out here or

Click on the link for your copy of "Daytime Sleepiness - Finding the Cause" that you can print out and share it with your doctor. 

Hyper Sleep News

Coffee related by https://www.flickr.com/people/trophygeek/ (CC BY 2.0)


Hypersomnolence Australia's articles on the latest news and information you need to know, read them here

You may be wondering how our new logo relates to Hypersomnolence Australia or indeed Idiopathic Hypersomnia.

Check out the story behind 

Hypersomnolence Australia's logo design


Did You Find the Information On Our Website Helpful?

If you found the information on this website useful, then please consider making a donation. Hypersomnolence Australia receives no funding and currently charges no membership as a result we are totally reliant on donations to help fund our ongoing work of raising awareness and providing education, information and resources. 

Keep in touch! Follow us on our social media or contact us here

"It's the everyday reality that I just feel I'm not getting as much out of life as I could be..."

In this video UK Dr Anu Bhatia is spot on with the 3 main symptoms of Idiopathic Hypersomnia with long sleep. Prolonged nighttime sleep (typically 12-14hrs), difficultly waking up and feeling unrefreshed and disorientated (sleep drunkenness) and excessive daytime *sleeping* - actually sleeping during the day not just tired or sleepy. Anne the young women in the video who is diagnosed with Idiopathic Hypersomnia says something I'm sure everyone with Idiopathic Hypersomnia can relate to:

"It's the everyday reality that I just feel I'm not getting as much out of life as I could be, because I'm tired or because I'm sleeping for half the day where I would rather be doing something else." - Anne

Is Idiopathic Hypersomnia/Hypersomnolence a Rare Disease?

We are often asked is Hypersomnia/Hypersomnolence a Rare Disease? and the answer is YES IT IS! Check out the Idiopathic Hypersomnolence page on Genetic and Rare Diseases Information Center (GARD).

Hypersomnolence Australia is a registered Not For Profit Health Promotion Charity