11. Feb, 2017

Do People With Idiopathic Hypersomnia Really Sleep Longer Than Normal?

Patients tell us that one of their biggest frustrations is some people don't believe them or don't think Idiopathic Hypersomnia is "real" ... So, do people with Idiopathic Hypersomnia really sleep longer than normal?

The answer is yes.

Various studies (see below) using objective testing methods ie: 24hr monitoring or Actigraphy, have confirmed that people with IH sleep longer than is considered normal (more than 8 hours in 24). The longest sleep episode or night time sleep is not always longer than normal however in every case the overall sleep time* in a 24hr period was longer than the controls (people who sleep a normal amount).

*this means the time patients are actually asleep, not just the time in bed.

Research also confirms that the sleep efficiency in patients with idiopathic hypersomnia is higher than normal, ie: people with IH generally have better than normal quality sleep.

This is from the study “Subjective symptoms in idiopathic hypersomnia: beyond excessive sleepiness”

"The Greek-origin word ‘hypersomnia’ means ‘excess of sleep’, which captures one of the main essences of the disease. One may regret that the word hypersomnia has progressively changed meaning to designate many conditions associated with excessive daytime sleepiness, but not with a real excess of sleep (Billiard, 1994). In idiopathic hypersomnia, the sleep excess is best expressed in unrestricted conditions, such as during the weekend, on holidays and in the sleep laboratory, with an average of three additional hours slept. One may notice in this study that the sleep time obtained during long-term monitoring in the sleep laboratory is very similar to the usual sleep time during holidays and on weekends in the patients, suggesting it is not a completely artificial measure, disconnected from true life.”

References:
Idiopathic Hypersomnia with and without Long Sleep Time: A Controlled Series of 75 Patients - Cyrille Vernet, MSc and Isabelle Arnulf, MD, PhD

Psychiatry and Clinical Neurosciences, Idiopathic Hypersomnia
- Billiard M, Merle C, Carlander B, Ondze B, Alvarez D, Besset A

Increased REM Density in Narcolepsy-Cataplexy and the Polysymptomatic Form of Idiopathic Hypersomnia - Jitka Vanková MD, Sona Nevšímalová MD DSc, Karel Šonka MD PhD, Nataša Špacková PhD, Katerina Švejdová-Bla¬ejová MD

Idiopathic hypersomnia: a study of 187 personally observed cases. Roth B. Int Neurol.

Subjective symptoms in idiopathic hypersomnia: beyond excessive sleepiness.
Vernet C, Leu-Semenescu S, Buzare MA, Arnulf I.

Idiopathic Hypersomnia Michel Billiard

Actigraphic assessment of sleep/wake behavior in central disorders of hypersomnolence. - Filardi M, Pizza F, Martoni M, Vandi S, Plazzi G, Natale V

Idiopathic hypersomnia - Michel Billiard, Karel Sonka

Idiopathic hypersomnia: a study of 77 cases.
Anderson KN, Pilsworth S, Sharples RD, Smith IE, Shneerson JM.

Idiopathic hypersomnia - A series of 42 patients - Bassetti and Aldrich

Hypersomnia With Sleep Drunkenness
Bedrich Roth, MD; Sonia Nevsimalova, MD; Allan Rechtschaffen

Principles and Practice of Sleep Medicine
Meir H. Kryger, ‎Thomas Roth, ‎William C. Dement