Awareness Month 2013
The first annual Idiopathic Hypersomnia Awareness Week was launched and hosted by Hypersomnolence Australia in September 2013. It was a month long awareness campaign focused on raising awareness of Idiopathic Hypersomnia
(also known as Idiopathic Hypersomnolence). This was a bold move for a new small organisation that receives no funding but we were determined that patients with Idiopathic Hypersomnia would have a voice.
There was next to nothing on the internet at the time about Idiopathic Hypersomnia/Hypersomnolence particularly in Australia so we set out to change that. We are proud of the achievements made during this time. It was the first time Idiopathic Hypersomnia/Hypersomnolence had ever appeared in the media via a radio interview with Ola Nafeh on the Community Connect program 92.1FM. We also got the Sleep Health Foundation, Australia’s national sleep organisation to finally include Idiopathic Hypersomnia as a sleep disorder on their website.
We would like to acknowledge the support and assistance we received during this event. It was due to the overwhelming support from patients that encouraged us to make sure that this became an official annual international event, moving forward known as the annual international Idiopathic Hypersomnia Awareness Week.
Special thanks to;
Ola Nafeh and Community Connect 92.1FM and Isabel Messnick for volunteering her time and talent to produce the artwork used for the event.